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Disclaimer: Although from time to time we check every site on the
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1. Muscular Dystrophy Campaign
The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders.
It has pioneered the search for treatments and cures for
nearly 50 years and provides practical, medical and emotional support to people affected by the conditions. (Registered charity no. 205395)
More Info....
Rating: 0.00 | Votes: 0
| Hits 213 | Date Listed:
30 May 2008
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2. Living with Cerebral Palsy
I often get asked about my disability and I reply I have Cerebral Palsy, which effects my movement, and I also have Scoliosis. I few people look a bit puzzled when I mention Scoliosis as they haven't heard of it, I say to them well, its what's called curvature of the spine. I was born with Cerebral Palsy and diagnosed with Scoliosis in my twenties when I found out I had this condition I also didn't know what this was. I then decided to do my own research into this in terms of Cerebral Palsy and Scoliosis. I browsed many websites although at the time there wasn't very much information available. I then decided to set up this website and discussion forum, so that I could make contact with other people in a similar situation as myslef and share my experiences with others.
More Info....
Rating: 0.00 | Votes: 0
| Hits 198 | Date Listed:
14 Jul 2008
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3. Becker United
The UK based Becker Muscular Dystrophy support group for people with BMD, their Families and Carers. Becker United are here to help families as well as adults with BMD and we try to provide Information, advice and links etc relevant to families. We know that the best help we can give a family of a child newly diagnosed with BMD is to put them in touch with other families who have gone through the same.
More Info....
Rating: 0.00 | Votes: 0
| Hits 181 | Date Listed:
14 Jul 2008
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4. DRUM (Disability Recreation Unity Movement)
DRUM is a small registered charity providing day services and support to adults with physical and/or sensory disabilities and their carers in Hertfordshire.
The majority of members were not born with a disbaility but developed one through accident or illness such as a stroke or MS. DRUM is a user-led organisation, run by a management committee of disabled members and carers.
DRUM is currently open from 9am-3pm on a Mon, Tue, Fri & Sat at Parkgate Youth & Community Centre, Southwold Road in Watford and on a Wednesday at the Hartspring Community Centre, off Park Avenue in Bushey. Services include:- transport, refreshments, light lunches, daily activity sessions, carer support, day trips, social events and outings.
Daily activity sessions include:- art, creative crafts, ceramics, sculpture, drama, yoga, indoor bowls and angling.
DRUM is supported by Hertfordshire Adult Care Services
More Info....
Rating: 0.00 | Votes: 0
| Hits 181 | Date Listed:
23 Oct 2008
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6. Herts & S. Beds ASBAH
Support & information for people with spina bifida &/or hydrocephalus & their families.
28 Gladeside, St. Albans, Herts, AL4 9JA.
Email: hamrock@supanet.com
More Info....
Rating: 0.00 | Votes: 0
| Hits 168 | Date Listed:
13 Mar 2008
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7. Overton Studios Trust
Overton Studios Trust provides world-wide therapeutic support, holistic healing and media production for people with:
Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, Post Viral Syndrome, Fibromyalgia & Chronic Fatigue & Immune Dysfunction Syndrome.
More Info....
Rating: 10.00  | Votes: 1
| Hits 130 | Date Listed:
8 Jun 2009
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